Psalm 91:4 "He will cover you with his feathers; you will take refuge under his wings. His faithfulness will be your shield and rampart."
STATIONERY WITH A STORY
Art that speaks. Stories that matter. Smiles that last.
Mary Alys Rinehart and Carter Rigsby are two extraordinary young people who were both born with ectodermal dysplasia, a rare genetic condition that affects teeth, hair, nails, and sweat glands. Despite challenges, they’ve found joy and confidence through art. Their drawings—full of color, imagination, and resilience—have been turned into stationery you can use to share encouragement and love with others.
The best part - every pack of stationery sold supports the mission of National Foundation for Ectodermal Dysplasias (NFED) and strengthens the push to pass the Ensuring Lasting Smiles Act. By choosing this stationery, you're not just sending a card - you're sending hope.
The best part - every pack of stationery sold supports the mission of National Foundation for Ectodermal Dysplasias (NFED) and strengthens the push to pass the Ensuring Lasting Smiles Act. By choosing this stationery, you're not just sending a card - you're sending hope.
Ensuring Lasting Smiles Act and NFED
The Ensuring Lasting Smiles Act (ELSA) would require insurance coverage for outpatient and inpatient items and services related to diagnosis and treatment of a congenital anomaly or birth defect that primarily impacts the appearance or function of the eyes, ears, teeth, mouth or jaw. This bill would ensure that families and impacted individuals could receive medically necessary treatment due to their congenital anomaly. This bill would also assist any individual with a congenital anomaly, not just those diagnosed with ectodermal dysplasia.Insurance companies often deem these treatments as cosmetic, when they are anything but. These treatments restore the body to it's fully functioning state and are vital for these patients.
The National Foundation for Ectodermal Dysplasia (NFED) is the worldwide expert on ectodermal dysplasias and the only advocacy organization in the United States dedicated to those living with these disorders. They provide resources and education for impacted individuals and families. They are also active in advocating for the Ensuring Lasting Smiles Act.
For more information, or to contact your representatives to ask them to support ELSA, click below.
The National Foundation for Ectodermal Dysplasia (NFED) is the worldwide expert on ectodermal dysplasias and the only advocacy organization in the United States dedicated to those living with these disorders. They provide resources and education for impacted individuals and families. They are also active in advocating for the Ensuring Lasting Smiles Act.
For more information, or to contact your representatives to ask them to support ELSA, click below.
