Meet the Artists
Mary Alys Rinehart
Mary Alys Rinehart was diagnosed with Hypohidrotic Ectodermal Dysplasia after her parents noticed that her teeth were misshapen and extremely sharp. A local pediatric dentist then shared his suspicion that Mary Alys might have the rare genetic disorder. It took nearly six months of weekly calls to get into a genetics hospital for testing, and even longer to eventually receive the confirmation. Now, Mary Alys is a thriving three year old who loves to sing, dance and play with her older brother. Her parents are deeply grateful for the support the National Foundation for Ectodermal Dysplasia has provided, and rely on their faith to guide the use of their daughter's story.
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Carter Rigsby
Carter Rigsby was diagnosed with hypohidrotic ectodermal dysplasia at seven years old after his dentist noticed missing permanent teeth. In addition to those issues, he has difficulty with his skin, jawbone and overheating. He is now an extremely outgoing, outdoorsy thirteen year old who loves fishing, hunting and all things sports. His family focuses on the things they can do to help, sych as using their voices to advocate for Ensuring Lasting Smiles Act. They know that God has a plan for all, and that each person is beautifully and wonderfully made.
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